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Saturday, April 25, 2015

Chummy Chum Graces Rare Disease Event in Partnership with Mrs. Sison and UP College-Manila

CCF went to UP Manila to cheer up children with rare disease, upon the invitation of UP-Manila. It is a first time for us to have an outreach activity intended for children having rare disease. The event was carefully planned. As early as January, UP Manila has already reserved the scheduled slot to CCF. 
    At first I was not aware of this disease, so I looked it up over the internet and this is what I found; 'A rare disease, also referred to as an orphan disease, is any disease that affects a small percentage of the population. Most rare diseases are genetic, and thus are present throughout the person's entire life, even if symptoms do not immediately appear. Many rare diseases appear early in life, and about 30 percent of children with rare diseases will die before reaching their fifth birthday.[1] With a single diagnosed patient only, ribose-5-phosphate isomerase deficiency is considered the rarest genetic disease.

   On this day everyone helped out to give happiness to poor children who are afflicted with this disease. We salute the parents of these children for taking good care of them, to Mrs. Sison for trusting us and for sponsoring CCF beneficiaries.





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